There follows a full list of my peer-reviewed publications. If you click on the title, it should link you through to the publisher’s website so that you can read the full abstract. If you’re having problems accessing a paper that you’d like to read, please let me know.
Soosaipillai G, Wu A, Dettorre GM, Diamantis N, Chester J, Moss C, Aguilar-Company J, Bower M, Sng CCT, Salazar R, Burnet J, Jones E, Mesia R, Jackson A, Mukherjee U, Sita-Lumsden A, Segui E, Ottaviani D, Carbo A, Benafif S, Wurstlein R, Carmona C, Chopra N, Cruz CA, Swallow J, Saoudi N, Felip E, Galazi M, Garcia-Fructuoso I, Lee AJX, Newsom-Davis T, Wong YNS, Sureda A, Maluquer C, Ruiz-Camps I, Cabirta A, Prat A, Loizidou A, Piccart M, Gennari A, Ferrante D, Tabernero J, Russell B, va Hemelrijck M, Dolly S, Hulbert-Williams NJ (joint corresponding author) & Pinato DJ, on behalf of the OnCovid study group (In Press). Specialist palliative and end of life care for patients with cancer and SARS-COV-2 infection: a European perspective. Therapeutic Advances in Medical Oncology
Hulbert-Williams NJ, Leslie M, Hulbert-Williams L, Koczwara B, Watson E, Hall P, Ashley L, Coulson N, Jackson R, Millington S & Beatty L (In press). Adaptation and replication testing of the benefits of online psychological support for cancer survivors: Protocol for the Finding My Way UK Trial. JMIR Research Protocols.
Hulbert-Williams NJ, Norwood S, Gillanders D, Finucane A, Spiller J, Strachan J, Millington S, Kreft J & Swash B (2021). Brief Engagement and Acceptance Coaching for Hospice Settings (the BEACHeS study): Results from a Phase I study of acceptability and initial effectiveness in people with non-curative cancer. BMC Palliative Care, 20(96).
Frangou E, Bertelli G, Love S, Maclean MJ, Glasspool RM, Fotopoulou C, Cook A, Nicum S, Lord R, Ferguson M, Roux RL, Martinez M, Butcher C, Hulbert-Williams NJ, Howells L & Blagden SP (2021). OVPYSCH2: A randomized controlled trial of psychological support versus standard of care following chemotherapy for ovarian cancer. Gynecologic Oncology, 162(2), 431-439.
Beatty L, Koczwara B, Butow P, Turner J, Girgis A, Schofield P, Hulbert-Williams NJ, Kaambwa B & Kemp E (2021). Development and usability testing of a web-based psychosocial intervention for women living with metastatic breast cancer: Finding My Way-Advanced. Journal of Cancer Survivorship, 15(3), 403-409.
Hulbert-Williams NJ, Leslie M, Hulbert-Williams L, Smith E, Howells L & Pinato D (2021). Evaluating the impact of COVID-19 on supportive care needs, psychological distress and quality of life in UK cancer survivors and their support networks. European Journal of Cancer Care, e13442.
Hulbert-Williams NJ, Hulbert-Williams L, Pendrous R, Flynn R, Swash B, Evans G, Price A, Mullard A & MacDonald-Smith C (2021). Evaluating process and effectiveness of a low-intensity CBT intervention: A pilot trial of the EPELIT intervention for women with gynaecological cancer. AMRC Open Research.
Hulbert-Williams N, Hulbert-Williams L, Patterson P, Suleman S & Howells L (2021). Acceptance and Commitment Therapy (ACT) Enhanced Communication Skills: development and evaluation of a novel training programme. BMJ Supportive & Palliative Care.
Shaw J, Kamphuis HCM, Sharpe L, Lebel S, Smith AB, Hulbert-Williams NJ, Dhillon HM & Butow P. (2021). Setting an international research agenda for fear of cancer recurrence: an online Delphi consensus study. Frontiers in Psychology — Psycho-Oncology.
Hulbert-Williams L, Pendrous R, Hochard KD & Hulbert-Williams N. (2020). In search of scope: A response to Ruiz et al. (2020). Journal of Contextual Behavioural Science, 18, 306-311.
Kent W, Hochard K & Hulbert-Williams NJ. (2020) A review of stress-management interventions for the oncology nursing workforce: what do we know and what should we be doing differently? Health Psychology Report, 8(1), 1-19.
Lambert SD, Coumoundouros C, Hulbert-Williams NJ, Shaw J & Schaffler J. (2020). Building the capacity for psychosocial oncology research: A survey of the research barriers and training needs within the International Psycho-Oncology Society (IPOS). Journal of Psychosocial Oncology Research & Practice, 2(3), e23.
Pendrous R, Hochard KD, Hulbert-Williams L & Hulbert-Williams NJ. (2020). Appetitive augmental functions and common physical properties in a pain-tolerance metaphor: An extended replication. Journal of Contextual Behavioural Science, 16, 17-24.
Hulbert-Williams NJ, Pendrous R, Hulbert-Williams L & Swash B (2019). Recruiting cancer survivors into research studies using online methods: a secondary analysis from an international cancer survivorship cohort study. eCancer Medical Science, 13, 990.
Hulbert-Williams NJ, Hulbert-Williams L, Mulcare H & Whelen L (2019). The Psychological Impact of Cancer (PIC) Scale: Development and comparative psychometric testing against the Mini-MAC Scale in the UK and Australian cancer survivors. Journal of Psychosocial Oncology Research & Practice, 1(2), e8.
Kent W, Hochard KD & Hulbert-Williams NJ (2019). Perceived stress and professional quality of life in nursing staff: how important is psychological flexibility? Journal of Contextual Behavioural Science, 14, 11-19.
Hulbert-Williams NJ, Norwood S, Gillanders D, Finucane A, Spiller J, Strachan J, Millington S & Swash B (2019). Brief Engagement and Acceptance Coaching for Community and Hospice Settings (the BEACHeS Study): Protocol for the development and pilot testing of an evidence-based psychological intervention to enhance wellbeing and aid transition into palliative care. BMC Pilot & Feasibility Studies, 5, 104.
Howells L, Hulbert-Williams NJ & Blagden SP (2019). New challenges in psycho-oncology: Using drug development methodology to improve survivorship and supportive care intervention trials (Invited Editorial). Psycho-Oncology, 28(7), 1362-1366.
Sutton PA, Bourdon-Pierre R, Smith C, Appleton N, Lightfoot T, Gabriel C, Richards B, Mohamed S, Mason-Whitehead E, Hulbert-Williams NJ & Vimalchandran D (2019). Evaluating unmet needs in patients undergoing surgery for colorectal cancer: A patient reported outcome measures (PROMS) study. Colorectal Disease, 21(7), 797-804.
Kemp E, Koczwara B, Turner J, Girgis A, Schofield P, Hulbert-Williams N, Levesque J, Spence D, Vatandoust S, Kichenadasse G, Roy A, Sukumaran S, Karapetis C, Richards C, Fitzgerald M & Beatty L. (2019). Internet use and preferences among women living with advanced breast cancer. The Breast Journal, 25(2), 290-295.
Lisy K, Ward A, Schofield P, Hulbert-Williams N, Bishop J & Jefford M (2019). Patient-reported outcomes of sexual and gender minority cancer survivors in Australia. Psycho-Oncology, 28(2), 442-444.
Hulbert-Williams NJ, Beatty L & Dhillon H. (2018). Psychological support for patients with cancer: evidence review and suggestions for future research. Current Opinion in Supportive & Palliative Care, 12 (3), 276-292.
Kemp E, Koczwara B, Butow P, Turner J, Girgis A, Schofield P, Hulbert-Williams N, Levesque J, Spence D, Vatandoust S, Kichenadasse G, Roy A, Sukumaran S, Karapetis C, Richards C, Fitzgerald M, Beatty L. (2018). Online information and support needs of women with advanced breast cancer: A qualitative analysis. Supportive Care in Cancer, 26, 3489–3496.
Ferrari M, Ripamonti CI, Pessi MA, Di Pede P, Hulbert-Williams NJ & Miccinesi G (2018). Relations between unmet needs, depression and anxiety in non-advanced cancer patients. Tumori, 105 (2), 144-150.
Lambert S, Girgis A, Belzile E, Hulbert-Williams N, Ciampi A. (2018). Beyond using composite measures to analyse the effect of unmet supportive care needs on caregivers’ anxiety and depression. Psycho-Oncology, online first access.
Beatty L, Kemp E, Butow P, Girgis A, Schofield P, Turner J, Hulbert-Williams N, Levesque J & Koczwara B (2018). A systematic review of psychotherapeutic interventions for women with metastatic breast cancer: Context matters. Psycho-Oncology, 27 (1), 34–42.
Brett, J, Boulton, M, Fenlon D, Hulbert-Williams NJ, Walter FM, Donnelly PK, Lavery B, Morgan A, Morris C & Watson E (2018). Adjuvant endocrine therapy after breast cancer: A qualitative study of factors associated with adherence. Patient Preference & Adherence, online first access.
Brett J, Hulbert-Williams NJ, Fenlon D, Boulton M, Walter F, Donnelly P, Lavery B, Morgan A, Morris C, Horne R & Watson E (2017). Psychometric properties of a modified Beliefs about Medicine Questionnaire (BMQ) for women taking adjuvant endocrine therapies (AET) following early-stage breast cancer. Health Psychology Open, online first access.
Brett J, Fenlon D, Boulton M, Hulbert-Williams N, Walter F, Donnelly P, Lavery B, Morgan A, Morris C & Watson E. (2018). Factors associated with intentional and unintentional non-adherence to adjuvant endocrine therapy following breast cancer. European Journal of Cancer Care, 27(1).
Shipman H, Flynn S, MacDonald-Smith C, Brenton J, Crawford R, Tischkowitz M & Hulbert-Williams N (2017). Universal BRCA1/BRCA2 testing for ovarian cancer patients is welcomed, but with care: how women and staff contextualise experiences of expanded access. Journal of Genetic Counselling, 26 (6), 1280–1291.
Ozakinci G, Swash B, Humphris G, Rogers S & Hulbert-Williams NJ (2017). Fear of cancer recurrence in oral and oropharangeal cancer patients: An investigation of the clinical encounter. European Journal of Cancer Care, online first access.
Hulbert-Williams L, Hulbert-Williams N, Nicholls W, Hochard K, Williamson S & Poonia J (2017). Ultra-brief non-expert-delivered Acceptance and Commitment Training exercises for food cravings. Journal of Health Psychology, online first access.
Swash B, Bramwell R & Hulbert-Williams N. (2017). Unmet supportive care needs and psychological distress in haematological cancer survivors: the moderating role of psychological flexibility. Journal of Contextual Behavioural Science, 6(2), 187-194.
Hulbert-Williams N, Plumpton C, Flowers P, McHugh R, Neal R, Semlyen J & Storey L (2017). The cancer care experiences of gay, lesbian and bisexual patients: A secondary analysis of data from the UK Cancer Patient Experience Survey. European Journal of Cancer Care, 26(4).
Swash B, Hulbert-Williams N & Bramwell R (2016). “Haematological cancers, they’re a funny bunch”: A qualitative study of haematological cancer patient experiences of unmet supportive care needs. Journal of Health Psychology, online first access.
Nicholls W, Patterson P, McDonald F & Hulbert-Williams N (2016). Unmet needs in young adults with a parent with chronic illness: a mixed method investigation and measure development study. Scandinavian Journal of the Caring Sciences, 31(1), 191-200.
Flynn S, Hulbert-Williams NJ, Hulbert-Williams L & Bramwell R (2016). “You don’t know what’s wrong with you”: An exploration of cancer-related experiences in individuals with an intellectual disability. Psycho-Oncology, 25(10), 1198-1205
Hulbert-Williams L, Hochard K, Hulbert-Williams N, Archer R, Nicholls W & Wilson K (2016). Contextual behavioural coaching: A scientifically coherent model for supporting behaviour change. International Journal of Coaching Psychology, 11(2), 142-154.
Wells M, King E, Toft K, MacAulay F, Patterson J, Dougall N, Hulbert-Williams N, Boa S, Slaven E, Cowie J, McGarva J, Niblock P, Philp J & Roe J. (2016). Development and feasibility of a Swallowing intervention Package (SiP) for patients receiving radiotherapy treatment for head and neck cancer – the SiP study protocol. BMC Pilot and Feasibility Studies, 2(40).
Plaskocinska I, Shipman, H, Drummond J, Thompson E, Sagoo G, Newcombe B, Barter E, Ridley P, Ng R, Miller S, Thompson F, Dunn A, Licence V, Webb H, Hodgkin C, Tee Tan L, Daley M, Ayers S, Rufford B, Parkinson C, Earl H, Duncan T, Pharoah P, Abbs S, Hulbert-Williams N, Crawford R, Brenton J & Tischkowitz M (2016). New paradigms for BRCA1/BRCA2 testing in women with ovarian cancer – results of the Genetic Testing in Epithelial Ovarian Cancer (GTEOC) Study. Journal of Medical Genetics, 53(10), 655-661.
Hulbert-Williams N & Storey L (2016). Psychological flexibility correlates with patient-reported outcomes independent of clinical or sociodemographic characteristics. Supportive Care in Cancer, 24(6), 2513-2521.
Hulbert-Williams N (2016). Supporting cancer patients with anxiety. Nursing in Practice, 88.
Wakefield C, Butow P, Aaronson N, Hack T, Hulbert-Williams N & Jacobsen P, on behalf of the IPOS Research Committee (2015). Patient-reported depression measures in cancer: A meta-review. Lancet Psychiatry, 2(7), 635-647.
Flynn S, Hulbert-Williams L, Bramwell R, Stevens-Gill D & Hulbert-Williams N (2015). Caring for cancer patients with an intellectual disability: attitudes and care perceptions of UK oncology nurses. European Journal of Oncology Nursing, 19(5), 568-574.
Jones J, Kane P, Polson R, Humphry R, Leslie S, Hulbert-Williams N, Simard S, Ozakinci G & Hubbard G. Protocol for a systematic review of screening tools for fear of recurrent illness in common life-threatening diseases. BMC Systematic Reviews, 4(10).
Wright C, Harvie M, Howell A, Evans G, Hulbert-Williams N & Donnelly L (2015). Beliefs about weight and breast cancer: An interview study with high risk women following a 12 month weight loss intervention. Hereditary Cancer in Clinical Practice, 13(1).
Flynn S, Hulbert-Williams N, Hulbert-Williams L & Bramwell R (2015). Psychosocial experiences of chronic illness in individuals with an intellectual disability: A systematic review of the literature. Journal of Intellectual Disabilities, 19(2), 178-194.
Hulbert-Williams N, Storey L & Wilson K (2015). Psychological interventions for patients with cancer: Psychological flexibility and the potential utility of Acceptance and Commitment Therapy. European Journal of Cancer Care, 24(1), 15-27.
Nicholls W, Hulbert-Williams N & Bramwell R (2014). The role of relationship attachment in psychological adjustment to cancer in patients and their spouses: a systematic review of the literature. Psycho-Oncology 23, 1083-1095.
Swash B, Hulbert-Williams N, & Bramwell R (2014). Unmet psychosocial needs in haematological cancer: A systematic review. Supportive Care in Cancer, 22(4), 1131-1141.
Walker K & Hulbert-Williams N (2014). Exploring the internal conflict between attitudinal support for organ donation and implementing action to join the Organ Donor Register. Health Psychology Update 23 (1).
Eccles S, Aboagye E, Alis S…Hulbert-Williams N et al. (2013). Critical research gaps and translational priorities for the successful prevention and treatment of breast cancer. Breast Cancer Research, 15(5).
Flynn S, Hulbert-Williams N, Tytherleigh M, Roberts S, Wilkinson H & Taylor E (2013). Living Life after Cancer Treatment: A Cancer Survivorship Support Group Evaluation. Chester Research Online, 2.
Hulbert-Williams L, Nicholls W, Joy J & Hulbert-Williams N (2013). Initial validation of the Mindful Eating Scale. Mindfulness, 5(6), 719-729.
Hains C & Hulbert-Williams N. (2013). Attitudes toward euthanasia and physician-assisted suicide: A study of the multivariate effects of healthcare training, religion and locus of control. Journal of Medical Ethics, 29(1), 713-716.
Hulbert-Williams N, Morrison V, Neal R & Wilkinson C (2013). Investigating the cognitive precursors of emotional response to cancer stress: Re-testing Lazarus’s Transactional Model. British Journal of Health Psychology 18(1), 97-121.
Watson E, Rose P, Neal R, Hulbert-Williams N, Donnolly P, Hubbard G, Elliot J, Campbell C, Weller D & Wilkinson C. (2012). Personalised cancer follow-up: risk stratification, needs assessment or both? British Journal of Cancer, 106, 1-5.
Hulbert-Williams N, Neal R, Morrison V, Hood K & Wilkinson C. (2012). Anxiety depression and quality of life after cancer diagnosis: What psychosocial variables best predict how patients adjust. Psycho-Oncology, 21(8), 857-867.
Hulbert-Williams N, Hulbert-Williams L, Morrison V, Neal R & Wilkinson C. (2012). The Mini-MAC Scale: Re-analysis of its psychometric properties in a sample of 160 mixed cancer patients. Psycho-Oncology, 21(7), 792-797.
Hulbert-Williams N (2010). Facilitating collaborative learning using online wikis: An evaluation of their application within postgraduate psychology teaching. Psychology Learning and Teaching Journal, 9 (1) 45-51.
Edwards A, Hulbert-Williams N, & Neal R (2008). Psychological interventions for women with metastatic breast cancer (Review). Cochrane Database of Systematic Reviews, 2008 (2).
Hulbert-Williams N, Hulbert-Williams L, McIlroy D, & Bunting B (2008). Anxiety in recovery from severe burn injury: An experimental comparison. Psychology, Health & Medicine, 31 (2), 162-167.
Pasterfield D, Wilkinson C, Finlay I, Neal R, & Hulbert N (2006). GP’s views on changing the law on physician-assisted suicide and euthanasia, and willingness to prescribe or inject lethal drugs: a survey from Wales. British Journal of General Practice, 56 (527), 450-452.
Hulbert N & Morrison V (2006). A preliminary study into stress in palliative care: Optimism, self-efficacy and social support. Psychology, Health & Medicine, 11 (2), 246-254.